The month of September is blood cancer awareness month. Yes it really is. I have to admit, I must have missed the memo I didn’t know about it until just the other day. Most of you know that I have health challenges, I do hit the highlights on my about page. The truth is that It’s hard to share something that is so much a part of my life and of the lives of those I love. Considering I’ve shared some of this before I am surprised to have tears streaming down my face while I write this. Wondering if it’s because there’s a whole month dedicated to it. I feel like it does kind of put the “gotcha” stamp on it. Although I do my best to handle my various health acronyms P.V. (polycythemia Vera), MAV (migraine seizures) and TBI (traumatic brain injury) with humor and a bit of self deprecating whimsy. I am still nervous to write this all down, where is the trepidation coming from? Lord knows. I mean it’s not a secret is it? I have chronic blood cancer. Is it the ” C” word? The dreaded word that makes some curl up in a ball and others run as fast as they can in your opposite direction?
I shared this funny squishy face photo of treatment day on instagram, you are following me on instagram, right?
I know most see me and say hmmm you don’t look sick, that always makes me smile. You can’t see my TBI either but it doesn’t mean it’s not there. Although my crystal encrusted walking stick sometimes gets attention, rarely does anyone ask why do you need it. That’s the best part, I’m just some eccentric woman accessorizing with some major bling. The don’t ask don’t tell of TBI’s. But, I digress, this post is about Chronic Blood Cancer, Polycythemia Vera to be exact. So what is it?
PV is a chronic disease, it is not curable. But, it usually can be managed effectively for long periods of time. I celebrated 12 years of life through treatments on January 28th. PV is one of a related group of blood cancers known as Myeloproliferative neoplasm. Medical supervision of a PV patient is mandatory. Oncologists and Hematologists treat patients with PV. PV may eventually progress into a form of leukemia known as acute myeloid leukemia.You can find more information about Polycythemia vera (PV) at the Leukemia & Lymphoma Society.
I am blessed to have a loving husband and family that are always there when I need them. They love me unconditionally and lift me up when my shoulders are weak from lifting others. Treatment days are no fun and although I giggle when I am there and smile and encourage. Once I get home I just fall “into” the couch, eat a piece of toast or a scrambled egg and “become the couch” until it is time to go to bed. It takes me about three days to recover and then taa daa…
The support of family and friends is what helps us all. If you know someone with blood cancer please know- they don’t want you to fix them, or take it away, they just want to see you, your face, feel you, your hugs, and know that our Lord and Savior will pick up where they leave off.
I was busy in my art room yesterday you may have seen my facebook post, ummmmmmmmmmmm why am I on facebook? Nobody ever sees anything I post, LOL. Anyway, I’ll be adding part of my newest collection to the shop later today. It is the Autumn Wine Collection, inspired by the season and wine for the color of rich burgundy. Autumn doesn’t have to be all rust and golds although they are nice too. I love bits of purple, pink, and wine in my autumn decor. Which I haven’t really started yet. But, I have been busy adding a bit of autumn to Katherines Corner this week.
You can still add your posts to the TFT link party until midnight tonight . Thank you for being the very best bloggy friends ever and
thank you for supporting Blood Cancer awareness month.